Poland sets sights on tackling postcode lottery in rare disease care
The EU has committed €77 million to strengthen European Reference Networks (ERNs) for rare disease patients.
Rare Diseases Europe
Polish government approves Rare Diseases Plan for 2024-2025 [Advocacy Lab Content]
Warsaw’s Rare Diseases Plan for 2024-2025, recently approved by the Council of Ministers, envisions comprehensive and coordinated healthcare services, with approximately €22 million allocated to achieve its implementation.
Europe needs new 360 rare diseases strategy [Advocacy Lab Content]
Rare Disease Day, 29 February, marks a moment when an estimated 30 million people living with rare diseases across Europe gain a louder voice. Europe now has a generational opportunity to scale up programmes capable of improving millions of lives.